Sunday, August 19, 2012

This little piggy ...& a whole lot of updates

I can hardly believe it... Jasiu these days is a little piggy.. not quite the bottomless pit but mostly looking for something to eat. He has started to begin to feed himself and is quite good at it.. mostly. All he needs is his "charlie and the numbers" and he will open wide and eat and eat. One of our biggest prayers have been answered and our determination to keep experimenting with food and keep introducing patiently has paid off. We are so blessed.. See for yourself.

Next update... Jasiu is quite the handyman... he even helped dad and grandpa with the swing set the kids got for Emily's 4th birthday...

Next... Can you believe my little girl will be 4 next week.. that's FOUR, I feel like she was a baby Jasiu's age just a few minutes ago and she is sooo big and smart. She is in the 95th percentile for height and weight so that makes her look like she is 5!!! Take a look :)

Finally, this Friday I had a  very special play date at our house... It was a Heart Buddies play date ! I had 5 HLHSers all that go to Hope for their surgeries and are Dr. Illbawi alumni. 

**Jasiu the youngest at 18 months - Post Glenn
**Austin - 20 months - Post Glenn
**Jonah - 2 years and 1 month - Scheduled for Fontan for October 1st.
**Kylan - 3 years and 3 months - - one year post Fontan
**Josie - 6 years - 3 years post Fontan and one year post 4th heart surgery

These 5 kiddos and two of their siblings Emily and Morgan (Austin's big sister) played so nicely together, enjoyed some pizza and snacks and the mamas got to talk in a language that a year and a half seemed foreign to me. We just "got" each other and were able to share stories and for those of us pre Fontan (which is fast approaching for all three) this was a great experience to talk and get a lot of our questions answered that even the doctors can't answer. In a heart community that recently faced so many heartaches, it was so refreshing to see these kids be so normal. It really gives a lot of hope.

Jasiu with Josie (HLHS) and Morgan

Emily with Jonah (HLHS)

Jasiu with Kylan (HLHS)

Jasiu with Austin (HLHS)

4 HLHSers and 2  big sisters (the fourth is Jasiu's but hanging out from the slide :)

(left to right) Josie Emily and Morgan

Today we went to a Polish Mass  in Indiana in our traditional Polish outfits and I think my little highlanders look so cute in their outfits (I may be a little bias here.. but hej.. it's my  blog).  Jasiu is quite the ladies man...

This little girl really liked Jasiu

my angels


  1. Thanks for joining my blog linking event! Your little guy is quite the cutie!!

  2. Hi Jaisu,
    My name is Jenna. You are a brave courageous fighter, You are a special miracle from god, a gift from above, earthly angel, a smilen hero. You are full of happiness, life, smiles, joy, fun,love, and spunk.

    I was born with a rare life threatening disease, and have 14 other medical conditions, and developmental delays.

    I wrote this poem
    Each of us are Special
    Each of us different,
    No one is the same
    Each of are us are unique in our own way,
    Those of us who have challenges, we smile through our day.
    Those who of us who have challenges, we smile through our day.
    It doesn't matter what others say
    we are special anyway.
    What is forty feet and sings? the school chior