Monday, January 21, 2013
He shed only a few tears when we had to place stickers and get hooked up, but after that, I hid the little transmitter in his hoodie and he forgot all about it. By the next day he got used to it and was carrying the pouch around his neck/shoulder. See some pics below. The funny thing to me was that he slept so still when wearing the holter, as if it was prohibiting him from sleeping on his stomach, which it wasn't but may feel a little uncomfortable and his 3 hour nap was spent on his back, which never happens!
|Sleeping very still with the pouch hidden under the pillow|
|total of 5 leads on this holter|
|The "extra" cables taped to his side|
|By morning he didn't seem to mind the pouch all that much|
I called the cardiologist to follow up from our cath and all was good news. Jasiu is ready for the Fontan but there is no emergency to have it immediately. His pressures are good and function is good as well. His activity level is not alarming and he is still able to be pretty active without getting too blue or extremely winded. The surgery scheduler will call us to get him a date. As of now they are scheduling for March so if she calls me in the next few weeks, I have a feeling we are looking at mid April. I don't mind so much because I don't think I'm just quite ready to hand him over, don't think I ever will be 100% ready but at least it gives us a little bit more freedom to enjoy his birthday and throw him a little bash to celebrate the big TWO !!! I'm torn between Mickey Mouse or John Deere Tractor theme, he loves them both, maybe a tractor riding Mickey .
Since it's not for a little while we are letting our extreme guard a little lower and going places and bringing Jasiu. This weekend we had a Polish Highlander Holiday Banquet from the village that I come from in Poland and we dressed up in our traditional outfits and Jasiu was just awesome. He LOVES this stuff! I think we will sign the kids up to dance practice so they can just be around it at least once a week and when they are ready start dancing. Take a look at our little dancer in action. Everyone was amazed at his energy level and that he looked so "healthy" as most people know of his diagnosis and are diligently praying for his well being. We are so lucky to be surrounded by so many friends and family that are lifting us up in prayer.
Today is "Dzien Babci" in Poland whcih is Grandma's Day and tomorrow is Dzien Dziadka, Grandpa's Day, similar to the US day which is actually in September. Since we are Polish and Emily goes to Polish School on Saturdays her class performed some songs and poems for the grandparents. Here is a video of Emily singing with her friend. Sorry for non Polish speaking viewers, but at least you can see her enthusiasm :) We are so proud of her. She is the ont on the right with the white sweater and white boots.
Our Grandmas and Grandpas are very involved in taking care of our kids and are the babysitters when we go to work daily, so we are very grateful for thier help and LOVE them very much. Thank you!
Saturday, January 12, 2013
Friday, January 11, 2013
We are settled into our comfortable quarters for the night and Mr. Jasiu is doing quite well. Better than I could have ever imagined... We were hanging out in recovery for about 2.5 hours and Jasiu couldn't find that one thing that brought him comfort, Elmo, his violin, even cartoons, then we went in u tube and searched "Goralskie tance" meaning Polish folk dancing which he loves and that was IT !!! For two hours we watched every variety of Polish highlands dancing and singing we could find on you tube and had to explain what it was to each nurse doctor or tech that walked in but jasiu was in 7th heaven and that's what mattered . what can we say he has Polish blood and he loves this stuff.
Then we made the trip up to second floor of Hope and that's when we saw Mr. Cranky for a bit because the nurses had to bug him, vitals, rounds, meds, pressure dressing removal and the like. But when no-one was in the room he was silly Jasiu like usual. He drank and ate like a champ and is sound asleep. Joe went home to get some rest, I'm at the hospital with my little man hoping for an uneventful and semi restful night.
The plan for the night is vitals at 11pm than 4am plus last dose of Iv antibiotic morning meds, x-ray, echo, EKG and then home. Tonight I'm praying it goes all according to plan. Thank you for your support, prayers, and nice comments on facebook all day. We need all the prayers and definitely feel your presence . Thank you all !
Http://YouTu.be/BuaGctu0kVw is the link just in case you done believe me about what we were watching for about 2 hours.
Wednesday, January 2, 2013
Ohh and Jasiu is starting the new year with a new hair cut. I feel like my baby just grew up. He wasn't too shaggy to begin with but he was starting to look like he has a mullet (and that's just not our style) so we decided to spruce things up for the holidays. Doesn't he look handsome? Thank you Ciocia Kasia.
|Bad mommy didn't take a before pic, but it would have been funny to see on picture.|
|All Done !|