From a cardiology standpoint, echo looks good, no signs of fluid anywhere and so our diet change is fine and now no more restrictions. In fact Jasiu has been feasting on French fries and pizza last week. We also cut down on one of the diuretics, Matolizone is now just every other day to see if he can handle it. One other thing I discussed with his new regimen is the constant bruising and head bumping. As you read in my previous post, this seems to be very common for Jasiu to bump and hit his head…. A LOT ! Based on this new information, Dr. H decided that the Coumadin therapy will be on hold for our guy until he gets a little bit more stable on his legs or more careful, whichever comes first. Then he played catch with Dr. H and the NP. The doctor decided that it’s less risky to take him off of the Coumadin than to risk a brain bleed if he was to hit his head that hard and be on the blood thinner. I joked that the only way to keep him out of trouble would be to tie him down to the couch, the doctor responded, we didn't save him with the surgeries so that he would sit down on the sidelines and not get to enjoy life to the fullest. So we continue to live life to the fullest and try to control this little ball of energy that we have now.
Not more than 24 hrs after we stop Coumadin, this is what is on Jasiu’s head ! It's hard to tell on this pic, but it's a pretty nice sized bump and scrape, that actually looks worse today than the day he got it because of the scab that formed.
He likes to wear his souvenirs on his head. This one is from yesterday’s trip to Brookfield Zoo. We were literally a few feet from the exit already getting ice cream for the road home and there he goes tripping and falling hitting the ice cream freezer with his forehead. Poor kiddo, he is one tough cookie.
In final news, and for purposes of documenting, Jasiu is starting potty training and he is doing very well. He has big boy underwear during the day and we put on big boy pull ups when we venture out However, on Friday he even woke up dry from the night and after nap time. This is a huge step for us and for Jasiu. We are so proud of him.
The Additional Diagnosis... Well turns out that what I thought was normal after multiple heart surgeries is actually a condition called DiastacisRecti - defined as a separation of the rectus abdominis muscle into right and left halves. Normally, the two sides of the muscle are joined at the linea alba at the body midline. It is essentially a cosmetic condition, with no associated morbidity or mortality.
|Jasiu at our quick lake gettaway getting into trouble. - Notice the ridge in the middle of his stomach.|
|Enjoying the summer ice cream cones|