My dear mother cooked a 2 course dinner and deserts and brought it all to my house so we could be together. My godmother and cousin also came over. Thank goodness everyone was healthy so that they could visit and we spend a nice afternoon all together.
Now to the test run... Since it was Easter and we had a whole bunch of family over we thought it would be a good day to allow John to be tube free and see if the reason he's not taking to the bottle is because of the tube in his throat. We gave him 12 hours and tested how much he would eat better and on demand. ( This was doctor approved of course as long as he got 12 oz during the 24 hour period) However Jasiu was quite content to have the tube out, it did not give him enough comfort to take even half of his bottle at once. During the 12 hours or so, he ate one to half ounce at a time and every 1-2 hours. It was exhausting for him and us, though we didn't mind he seemed to be struggling. Because we can't do this test run for a longer period of time just yet (fear of dehydration and impact of that on the heart) we had to put the tube back down. Sad day for us. One of the only good things from this was that we took a few pictures of Jas without the tube again and we got to see his precious face all day. I am praying that he gets stronger and stronger and can start taking gin more by bottle . I have a feeling that the throwing up and reflux has something to do with the NG tube but can't prove it unless he went longer without it, but we can't do that yet so that experiment will wait until later. We keep praying that he will just get it one day until then, we keep practicing the bottle with the tube in.
Now for a few pictures of our festivities:
|Emilka loves to cuddle with Jasiu|
|Emilka and Ola|
|loves to sleep like this|
|It was supposed to be a family photo...|
|...but Emilka passed out brfore we could :)|