We are losing our patience with Jasiu, each other, this hospital stay and even Emily . He no longer wants to eat ANYTHING, does not want his meds or even a wagon ride. We are still draining and they are testing for chyle once again.
As soon as I wrote this I'm feeling awful because I know this isn't the worst that can happen yet I find myself in an ultimate low. Praying for strength for our family to weather this storm in peace.