We are losing our patience with Jasiu, each other, this hospital stay and even Emily . He no longer wants to eat ANYTHING, does not want his meds or even a wagon ride. We are still draining and they are testing for chyle once again.
As soon as I wrote this I'm feeling awful because I know this isn't the worst that can happen yet I find myself in an ultimate low. Praying for strength for our family to weather this storm in peace.
Oh, Kathy, I am so sorry. Praying for you guys that you get this figured out and QUICKLY!!!
ReplyDeleteI am so sorry, Kathy! I remember those feelings exactly. You will get through it and soon will have your happy boy back. Kylan went without eating for over 2 weeks. I know it's hard and I am praying for strength, patience and healing for you all! Love you guys!
ReplyDeleteHe will eat SOON! Once those nasty chest tubes are out and especially once he gets home! <3 I hope you guys get home very very soon and that the test for chyle was negative. I had a special day with Morgan the first weekend that we were home from the hospital. We went to the mall and got a build a bear, rode the carousel and had lunch. It was good for both of us. Make sure to take walks. Being cooped up in the hospital room can make a person crazy. I know that first hand. <3 The gift shop at Christ has some really cute things. Let me know if you need anything. I can even sit with your little guy if you guys need a break or kidnap you and take you to lunch. <3 xoxo
ReplyDeletePraying for patience and strength for all of you.
ReplyDeleteI am sorry you are feeling frustrated but know that you will get through it. Jasiu is most likely not eating because of the chest tubes, they are so uncomfortable.
ReplyDeleteHow is his bloodwork? I wonder if he is like Keaton was & not wanting to take his meds because his tummy is empty from not eating so it makes him sick when he gets meds. Hang in there, stay strong & loving for Jasiu! <3