Saturday, May 4, 2013
We finally made it out the doors and went home, about 10 minutes into our 15 minute drive both kids were passed out. Jasiu slept for 4 hours uninterrupted and Emily 3. I think that the hospital exhausted them both, when Emily woke up, she looked panicked and quickly asked "where is Jasiu?!?" When I told her he was upstairs sleeping she needed to go check because she didn't believe me. I guess she really loves him after all.
The rest of the night went OK, we have 3 big challenges in the next 6 weeks.
1.) Fluid restriction ( 930 mls / 31 ounces per day) If not distracted he's begging and screaming for something to drink.
2.) Fat Free Diet - ideally zero grams of fat, at most we can have the .5gram a day from the 99% fat free hot dogs or lunch meat turkey breast that is on the market (one brand of each)
3.) Activity restriction - this boy thinks he can already conquer the world but the reality is his chest was just cut open and needs at least 6-8 weeks to heal. The first night we were home he tried to climb a chair and leaned his belly on the seat and tried to pull up and then screamed in pain, we didn't get there in time. For a pretty independent kid, this is a biggie. All he wants to do is go outside and play, run and most likely fall. When he falls on his knees and breaks the fall with his hands, it hurts him as well, I found out today :(
Monday we have our first INR check at the clinic and Friday is our 1 week follow up with Cardiac Clinic, X-ray, blood work and INR check. So we will have a busy weak but still trying to stay clear of crowds and germies in hopes of a quick recovery.
We continue to thank you for all the prayers and support.