Tuesday, May 14, 2013

Tubeless... (again)...

Jasiu's chest tube was pulled out today, again.  It has been in for 7 days and today is our 9th day in the hospital after being readmitted, so that makes 21 days in the hospital for our Fontan recovery.  Jasiu went home for the first time after being in the hospital for 21 days after he was born, so this is now beating our record for recovery time. I know it's a lot of numbers, but for some reason I have the urge to quantify everything, just another part of my OCD.

Today was also a good mood day for Jasiu, part of it was versed (happy drug for the chest tube removal) and part of it was that the chest tube was removed and he feels much better. But the best part was that we have had many visitors lately. We have had grandma here a few times, my sister, Emily and my cousin surprised us today. Visitors really liven things up around here, this 200 sq ft room and cartoons all day long can get pretty mundane, our strolls around the hallway aren't that exciting, but we take a morning stroll while our bed is changed and an afternoon stroll after nap time.

Health wise, the x-rays looked great last few days, and diuretics were altered today as well however we are quite positive on our ins and out's that I think they will slightly increase them tomorrow and continue monitoring I's and O's and x-rays. The D word was not mentioned yet and we are not even asking the doctors because we want to be sure we are ready for the H word. No rushing this time.  We restarted the cumadin and we will be monitoring INR numbers again as well.

Thank you for all the prayers and support.

Maly gorol

No tube = baby yoga time

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