Today I feel like we took a big step backwards in this Fontan Journey. It was really tough to hear that he will need to go through another procedure to place the chest tube, but the first and second and third dose of lasix, change in medication to stronger diuretics and more aggresive approach was not doing the trick even wih 3 days of IV diuretics.
Hopefully this is what Jasiu needs to get on with his life. He was not a happy camper when the anaesthesia wore off so we once again battle a groggy baby and in a lot of pain. It's hard to see but in the long run, this fluid was not going to go away by itself.
So now we pray that the fluid goes away and stays away and that our happy baby comes back soon.
Thank you for all your help.
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