Saturday, February 26, 2011

Day 1

Our baby boy had a pretty good day today. He did have issues at night with sats that dropped to the 50's but than that was stabilized. During the day he had a respiratory therapist try to get some flem or stuff from his lungs, but as most cardiac babies he did not like to be disturbed. They did this a few times and than he was ok and stable again.

Since this is the weekend, we did not get an update from the cardiology team, but the NICU nurse told me that if everything continues as it is going, he will have the Norwood surgery, first of three surgeries to rewire his circulation on Tuesday. Jasiu will be FOUR days old. This is one of the hardest surgeries because one he's a newborn and he has to be placed on bypass. We will learn more about the details from the surgeons probably on Monday. 

Jasiu finally met his Aunties Aga, Kasia and Teresa, grandma Krol and Auntie Skupien. I was with him the whole time they were visiting and he got way too excited hearing my voice the nurse said. I saw his breathing change a bit, so I left the NICU to give him a little break.  I can't believe how much he can recognize my voice. It breaks my heart to see him look so good yet be so fragile. 

I am doing well as well, moving around more. The plan for me is to be discharged Monday night or Tuesday morning, which on "hospital time" is probably around 3 pm on Tuesday.  I am so thankful that we live so close to such a good hospital that I can split my time and see my daughter every day and still be here at the hospital with my son.  We keep asking everyone to pray for him so that he has the strength to get through this.

Photos on blog will have to come later when I have more time and energy to work on it.  :( Some are uploaded to FB as it's easier than the blog.



  1. Good to hear he's doing well - go Jasiu! Praying you get discharged soon. And just so you know, you can set your blog up so you can email pics directly from your cell phone. It's under mobile options I believe - you just enter the email address you have linked to your phone. Then, you can write your blog entries, send pics, etc. all from your phone. That's what I did a lot at the hospital. Not quite as easy as FB (you can't enter captions), but easier than waiting until I could get home and on my computer. Good luck! Heart hugs...

  2. I am so happy to hear he is doing so well. It must me really hard not to be with him all the time, but you will be soon. You all remain in my thoughts and prayers.